Vivie's Report Card

On Monday late afternoon the charge nurse informed me they were going to have to move Viviana to a triple-shared room (again) for the night due to a full-house and a need for a single room. After our little cockroach experience I fought the idea and pulled the x-micro-preemie card (afterall, they don't REALLY want to expose my already immunodeficient baby to other diseases with unscreened visitors for two other patients, not to mention the two other patients--you should have seen what types of people were walking the halls of this floor--yikes is a good description). I'm sure the charge nurse thought I was trying to be difficult. I did not let down on my position because I knew we were going to be discharged 12-15 hours later, given a good night without much wheezing. The last thing I wanted to do was move all our stuff. Anyone that has seen the way we make the hospital room our 'home' and move right in knows what I'm talking about.

Viviana was weaned off oxygen early Monday morning and so with decent stats, no wall-suction (deep lung or nasal), and no increased symptoms, we were home-free Tuesday morn.
Only one problem-Vivs needed the snot cleaned out of her nose to breathe right since she can't blow her nose. The hospital-issue little blue bulb syringes would have probably worked better basting a turkey. I have one at home that works like a charm and so with these issues stacked against us I pushed for a Monday night discharge--and got it, thankfully. We arrived home just in time to tuck my sweeties in bed and kick up my feet for a few minutes....and actually talk to Curt without tagging him to 'go'.

Vivs is being treated like an asthma patient with severe bronchialitis---no biggie until you see her chest cave during a struggle. I'm thankful for my nebulizer and the xopenex treatments she receives at home. That darn chronic lung disease!! If it's the worst thing that happens to her as a result of being a 26-weeker, I'll take it.

She had her G.I follow-up today with her hemangiomatosis. I'm proud to report that she is faring better than even the Doc expected. The ultrasound revealed that the hundreds of lesions/tumors on her liver have mostly either involuted or faded, with the exception of one large one. The kidney lesion appears to have involuted as well and so with nice lab results, there's no real reason for concern at this point with the hepatic involvement.

We need to visit with the Dermatologists because there are a few that have grown and are deep-rooted that may cause her problems--especially on her head that may indicate an obstruction in her brain. But that's an area the GI Specialist doesn't have any expertise in, so it was just her hunch which is just about as good as my 3-year-olds. We will still follow up with more imaging studies (ultrasound) in 3 months. Wheeww! When can I jump off this race and take a breath? My guess is never--I suppose I signed up for this marathon so bring it on--I like the positive results! Go Vivie!

This is Lexie taking part in Vivie's Xopenex treatments...gotta teach them young! And how happy is Vivie to be home??!!! That's the medicine, not puke on her chin...this time at least!