So don't you hate those days where you have to plan every minute of the day from sunrise (in my case before sunrise) to sunset just to make sure it runs smoothly? I'm exhausted just thinking about it! We had three major Dr. appointments today from one end of the city to the other. I think I would have been just plain retarded to try to take Izzie & Lexie so THANK YOU Malisa & Karyn for chilling out with them so we could run around with Viviana!
Vivie had her liver/kidney ultrasound this morning down at Rady Children's Hospital next door to where she was born...always brings back a flood of memories when I'm down in that neighborhood--did we really live that life at the hospital for 4 months? Still seems more than a little bit surreal!
But on a side note a nurse today told me of a mom who actually had it more difficult. I know everyone handles his/her stress in different ways, but this one takes the cake. This mom had a 24 week old preemie that survived and then didn't practice good birth control, got pregnant again right away and then delivered a 23 week old preemie so that her x-micro-preemie children are 7 months apart...and she also has a 3 year old. How's that for a lesson in birth control? At least the next oldest in our family is almost 2 years older...even if it is Izzie (those who KNOW her know what I'm talking about) and even if there's 6 of 'em!
So back to Vivie's day with the Doctors. Vivs ultrasound went well and in fact her hemangiomas appear to be the same in number and in size in her liver. The one adjacent to her kidney looks like it has reduced in size which may indicate that these hemangiomas could be involuting, or decreasing in size. A follow-up ultrasound in January will tell us for sure what's going on.
Then it was off to the GI Specialist in Escondido...pumping & feeding Vivs somewhere along the way. I'm so unimpressed with this group of specialists. They called me this morning on the way to the ultrasound to change my 2:00 appt to mid-afternoon because the Dr. didn't want to take later appointments (which was scheduled 6 weeks ago). I was a little ticked by the phone call and wasn't paying attention on the freeway and took the wrong turn-off and ended up going towards Ramona...don't you hate it when you're in a hurry and do stupid things?
Anyway, it worked out fine and we made it to an earlier GI appointment. Viviana's liver enzymes from the blood tests we did yesterday are a little elevated, which indicates that her liver is a little out of whack. It may also be due in part to passing this crazy sickness around for the last few weeks at our house. So we'll repeat those labs in 3 weeks to make sure. Because of the good news on the ultrasound and overall on the lab results she doesn't need another GI appt until February. Originally they wanted to repeat the MRI (which would require Vivs to go under) in February but I'm crossing my fingers that it won't be necessary!
So I dilated Vivie's eyes and off we went to see the Opthamalogist. Vivie's eyes look the same. The ROP is completely gone and the ridge that was created by the ROP has dissolved as well. The blood vessels still need to grow past that ridge in her right eye, but her left eye is perfect. So we won't go back to that Dr. for another 6 weeks which is a beautiful thing!
With all the needle poking, proding, rubbing, pulling at her eyes, tummy, liver, head...no wonder she's so ex
hausted tonight and spitting up all her yummy milk that took so much effort to make!
Both of us are exhausted and Vivs is conked out in her carseat---wish I could join her! When's it my turn? I mean really...when's it my turn??! The kids just walked in from their first day back at school since the evacuation (can I say how much I loooove school??)
Because I was a procrastinator and didn't get the kids' costumes in order I get to run around and do that tonight to fill in the missing pieces. Rapunzel & Cinderella without crowns just don't work too well and poor Mons doesn't have a costume! He refuses to be a pirate for the 3rd year in a row. When did they start getting opinions??!!
14 years ago
6 comments:
You make me tired just reading about your day. And I thought mine was bad! Good luck w/ the costumes...let me know if you need anything. I've got a pretty cute Indian one Monson could wear. I'm so glad all is well w/ Vivie. I need to see you guys so I can get some snuggles in. Hang in there...someday you'll sleep. Maybe.
Seriously, stop. You're making me tired. :)
You can always pull out the sports/dance uniforms for Halloween:) Someday your kids will look back and say, "How did mom do all of this for us???" So glad to hear the good reports for Viv. That'll carry you through the craziness, no doubt.
where in the world did you get that adorable outfit???
That outfit is the cutest thing ever--and Vivs wears it well, I might add! Thanks, Allison!
...And this is why we are stopping at 3. I'm not that gifted in stress management so I will avoid the stress. I REALLY hope you have good insurance because that's a lot of doctors appointments for one kid.
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